Health Information (and Misinformation) on the Web

by Cynthia M. Daffron

We all know that we should be honest with our doctors. How can doctors help if they don't know what is really going on? We all know this, but truth be told, we are not always honest. Bob Dole may be willing to discuss his ED troubles on national TV, but few people are as forthcoming in discussing health issues they find embarrassing, whether they be panic attacks or acne. But by not talking to our doctors, we limit our ability to take charge of and improve our own health. With the advent of the Internet, gathering data and advice on a myriad of health conditions is easier and faster than ever before. You may remain as anonymous as you want while you research, so you can find the answers to questions you should (but might never) ask your doctor. That knowledge can make approaching doctors less awkward and more productive.

The Internet has made the somewhat mysterious world of health and medicine much more accessible to the layperson. You do, of course, have to go to the doctor for advice, procedures and prescriptions, no matter how much information you gather (they don't, and shouldn't, hand out Viagra like candy). Odds are, however, that if you have a health question, someone else has had the same question and posted the answer somewhere on the Web. Consumer health information allows us to become more knowledgeable about a condition, diagnosis, or medication and can help compensate for doctors who may not have sufficient time to explain as much as you would like. The Internet enables you to learn more about a medical topic and so make a more informed decision on your health care choices.

Note that even with all the medical information on the Internet, an equal or greater amount of misinformation also exists out there in cyberspace. Before you celebrate or panic in reaction to information you find, consider the source of that information. Be wary of any site that is trying to sell you a particular point of view. They may have an axe to grind or be trying to sell you a fix-all product. If the site authors offer medical advice, make sure the person providing the information has medical training. Anecdotal information can be interesting, but it is just that: anecdotal. What works for one person may not even apply to you. Above all, discuss any changes you plan on making with your doctor. Internet medical information will allow you to approach your doctor armed with more information and understanding of your complaint. So, you can ask more relevant, specific questions and make the most of the help and advice available to you. Internet information cannot, however, replace a doctor's care.

Depending on what information you are looking for, a number of web sites may be useful for collecting initial information. If you need a general overview, focus your search on "consumer" or "patient" information. A good starting point is the Health section of the web site for the National Institute of Health (www.nih.gov/health). The site provides access to a number of different research options. The Full-text Consumer Health Publications, under the Publications section on the main Health page, links to over 150 of the most requested NIH publications. In general, these articles have good, clear information, written without an excess of medical terminology or gratuitous Latin. Many topics also include links to associations and institutes dedicated to the subject matter.

You may also access MEDLINEplus, listed under Other Resources, from the NIH Health page. MEDLINEplus provides a list of links, both government and nongovernment, selected by the National Library of Medicine on variety of health topics. Topics are easy to find as they are arranged alphabetically. If you do not see what you need, you can also search all of MEDLINEplus. Like Full-text Consumer Health Publications, MEDLINEplus also links to organizations focusing on particular subjects.

Be careful not to confuse MEDLINEplus with the MEDLINE database. The MEDLINE database is accessible through a number of different sites, including www.nih.gov via PubMed and Grateful Med. This database is a comprehensive listing of citations, abstracts, and some articles that have been published in medical journals. MEDLINE is geared toward medical professionals and researchers. If your research does get to such an in-depth level, note that MEDLINE only has full-text articles online for a select number of journals. To receive actual copies of other articles (not just the citation and abstract), you will have to look up the journal in a medical library, or pay a fee to a document delivery service to do it for you.

If you are less interested in medical fact and more interested in moral support, consider joining the conversation in some of the support groups. Many associations have their own support groups and information lines. For a quick list of related associations, go to www.healthfinder.org, a service of the US Department of Health and Human Services, and enter your search term. Healthfinder will give you links to the web, and to organizations specializing in that subject. An American flag icon next to a result indicates that it is a government resource. If you want a direct path to a support group, check out Mediconsult (www.mediconsult.com). They have groups on topics varying from smoking cessation to depression to erectile dysfunction.

Participating in a support group may inspire you to discuss possible changes in your health regime with your doctor. When prescription drugs may help with the problem, you may want to check out the MicroMedex database. MicroMedex provides straightforward and extensive information on prescription drugs, including side effects and contraindications. Health Oasis, part of the famous Mayo Clinic of Rochester, Minnesota (www.mayohealth.org) allows free access to this database. Simply enter your prescription name (generic or brand name) in the search box on the home page. The list of articles returned will include the MicroMedex references.

The Internet is gaining more and more prominence in the dissemination of health information. Consumers and health care providers alike are seeing the benefits of quick access to comprehensive information. Consumers are better informed as a result, and so have more control over their health care, and ultimately, over their quality of life. Just remember: don't believe everything you read.

This site powered by the Logical Web Publisher™: Content management by Logical Expressions, Inc.